The Epilepsy Deaths Register for Ireland works with international partners to tackle Sudden Unexpected Death in Epilepsy (SUDEP) and other epilepsy-related deaths, although registries outside Ireland and the UK are limited. 

The Epilepsy Deaths Register for Ireland partners with the UK Epilepsy Deaths Register to provide vital information for research.  If you live outside Ireland you may still provide information about a death via However, you may also wish to contact the UK team direct to find out if there is a registry, or any research projects that you could provide information to within your Country.

How to register

Report a death

Or by

  • By post: Request a printed questionnaire by telephone, or contact the team here
  • By telephone: Call our confidential line: 01 906 1868 to make an appointment

You can choose to withdraw your registration at any time

The Registry produces reports based on anonymised information, all names and identifying information is removed from any published reports.

Epilepsy Ireland partnered with SUDEP Action to set up the EDRI but the confidential information provided is only available to the EDRI team.

If you have any questions about the register; if you would like support to complete the questionnaire or, if you would like to talk to someone about your loss, please contact our team:

Tel: 01 906 1868
Email: Contact our team