Contact our team

You can do this in any of the following ways:

By postEDRI Team, c/o SUDEP Action, 18 Newbury Street, Wantage, Oxfordshire, OX12 8DA

By phone –

  • Please call us on: 01 906 1868  (you will need to leave a message for a call back)

By email: 

By contact form – 
(Please note: We would never sell or swap your details and at any point, you can change your preferences by calling our Data Secretariat at +441235 772850 or emailing [email protected]. Please take a look at our Privacy Policy for more information.)

How to register

Report a death

Or by

  • By post: Request a printed questionnaire by telephone, or contact the team here
  • By telephone: Call our confidential line: 01 906 1868 to make an appointment

You can choose to withdraw your registration at any time

The Registry produces reports based on anonymised information, all names and identifying information is removed from any published reports.

Epilepsy Ireland partnered with SUDEP Action to set up the EDRI but the confidential information provided is only available to the EDRI team.

If you have any questions about the register; if you would like support to complete the questionnaire or, if you would like to talk to someone about your loss, please contact our team:

Tel: 01 906 1868
Email: Contact our team